I keep hearing on the Yahoo HipWomen group that well-meaning friends of newly-diagnosed dysplastics, upon hearing their diagnosis, tell them things like "it's impossible for adult humans to have hip dysplasia," or "it's impossible that bilateral hip dysplasia would not be caught at birth."
These same "friends" then question the diagnosis and treatment plan, making the poor recently-diagnosed patient question everything themselves. Believe me, the diagnosis is confusing and upsetting enough without the "well-meaning" buttinski commentary.
Now, I realize that I have been living in hip-dysplasia fantasyland for about a year and a half. Based on the blogs I follow and the online Yahoo groups to which I belong, it would seem the world is amply populated with adults diagnosed with hip dysplasia. They are everywhere -- soon to take over the world!
But of course, the reality is that we are a very tiny population in a world that hears the term hip dysplasia and says, "woof."
The truly unfortunate part of this is that some of these "friends" are also professionals who are entrusted with people's health issues: Physical therapists, sports trainers, and (gulp) I am sure some physicians. It's scary how much misinformation exists.
Granted, PAOs are a fairly new invention and in 20 years there will probably be a much better way to correct this problem. Or perhaps screening methods will improve so that all cases actually WILL be caught at birth and corrected. Meanwhile, I'm here to say that we adult dysplastics exist and our dysplasia didn't come about due to poor nutrition, sitting in "W" position, or child abuse; we were born with it. The evidence is overwhelming - it runs in my family and I am a first-born female. Can you say, "the genes were stacked against me?"
We veteran hip chicks (and dudes) can only continue to educate and encourage the newly-diagnosed, steering them to expert surgeons who understand the condition and away from those who don't. I guess that is why I continue this blog, despite being at the point where people probably think I should move on and get a life!